ESPN 50th Annual Meeting

ESPN 2017


 
Parental experience of paediatric kidney transplantation
STACIE BOWDEN 1 CATHY GILL 1 AMANDA RICHARDSON 1 GRAINNE WALSH 1 JOANNA CLOTHIER 1 JOANNA CLOTHIER 1

1- EVELINA LONDON CHILDRENS HOSPITAL
 
Introduction:

 Kidney transplantation is life changing not only for the individual receiving the transplant but for the whole family/support network. We were keen to explore the parental experience of pre and post kidney transplantation preparation and education at our hospital. With the aim of exploring parental experiences and views to improve the care provided to our children and their families.

Material and methods:

 Parents of children receiving a kidney transplant in the previous 6 to 24 months were invited to a 90 minute focus group. The group was facilitated by clinical psychology and a renal registrar and explored parents’ experiences of pre and post-transplant preparation and support. With parental consent audio-recordings were made and later transcribed. The data was then analysed using thematic analysis.1

Results:

 7 out of 24 families attended. Thematic analysis identified overarching themes reflecting the data collected.  Many families described positive experiences of feeling supported and well informed and viewed the team as caring and professional in their approach. Transplant was described by many as transformative for child and family. Challenges were raised for some, such as the demands of hospital visits and understanding of chronicity of condition. Sibling and family peer support were highlighted by some as areas for improvement. 

Conclusions:

 

The data has highlighted positive aspects of care and areas for further improvement. On-going thematic analysis will further refine the overarching themes.