Deadline for early bird registration
15 June 2017

 

 

Industry partners

The following industry symposia will take place during the 50th ESPN congress:

Thursday 7th
13:00-14:00        Fresenius Medical Care
17:00-18:00        Kyowa Kirin
17:00-18:00        Orphan Europe – Recordati

Friday 8th

07:45-08:45        Chiesi Orphan
07:45-08:45        Medtronic
13:30-14:30        Advicenne

ESPN is proud to partner with the following companies and other organisations, and very grateful for their financial support towards the 50th annual conference. 

Please visit company booths in Halls 1 and 2 during the break periods.

Click here for the exhibition hall plan.

Industry partners

Charitable and not-for-profit partners

 

 

Industry partners

 

ORPHAN EUROPE

www.orphan-europe.com

Orphan Europe, part of the Recordati Group is a unique pharmaceutical company dedicated to rare diseases.  Since 1990 we have specialized in bringing orphan drugs to market using big thinking and extensive know-how.  We are committed to improving the diagnosis and management of these diseases by strengthening collaboration and building expert networks.  Patients and their families are central to our planning, our thinking and our actions.

Orphan Europe is a leading company involved in the treatment of nephropathic cystinosis.
Join us for our satellite symposium on Thursday 7th September at 5.30pm.

We take rare diseases personally.

 

 

KYOWA KIRIN INTERNATIONAL PLC

www.international.kyowa-kirin.com

Kyowa Kirin International PLC, a subsidiary of Kyowa Hakko Kirin (KHK), is a rapidly growing specialty pharmaceutical company engaged in the development and commercialisation of prescription medicines for the treatment of unmet therapeutic needs in Europe and the United States. Ultragenyx is a clinical-stage biopharmaceutical company committed to bringing to market novel products for the treatment of rare and ultra-rare diseases, with a focus on serious, debilitating genetic diseases.

Please come to our symposium on Thursday 7th September in the Alsh Room.  View the programme here

 

 

FRESENIUS MEDICAL CARE

www.freseniusmedicalcare.com/en/healthcare-professionals/pediatric-dialysis/

Fresenius Medical Care is the world's largest provider of dialysis products and services. We are also committed to addressing the individual needs in the treatment of children on renal replacement therapy. A broad range of dialysis products  fulfilling the highest quality standards are available in the areas of:

  • Acute and chronic peritoneal dialysis
  • Chronic haemodialysis
  • Acute kidney injury

At the ESPN congress 2017 Fresenius Medical Care is:

  • supporting the Dialysis Master Class on September 6,
  • holding an industry symposium on Thursday 7, 13.00 - 14.00h with R. Shroff and C.P. Schmitt on how to improve dialysis outcome in children,
  • represented with a booth in the exhibition hall.

 

 

ADVICENNE                                                                            

www.advicenne.com

Advicenne is a late-stage biopharmaceutical company focusing on the development of paediatric friendly therapeutics for the treatment of orphan renal and neurological diseases. Advicenne develops potential treatments targeting critical unmet needs of orphan diseases in collaboration with Key Opinion Leaders.

In Nephrology, Advicenne developed ADV7103, an innovative oral formulation that is currently being evaluated in a pivotal Phase III trial in Europe in children and adults to address distal Renal Tubular Acidosis (dRTA). Preliminary Phase III clinical data will be presented in an oral presentation during session “Understanding tubular physiology to improve patient care”.

We will be also very pleased to welcome you to our satellite symposium on Friday 8th September at 1pm.

 

 

MEDTRONIC

www.bellco.net/default.aspx?lang=en

Bellco has been a pioneer in hemodialysis treatments since 1972, with a mission to create therapeutic solutions for chronic renal failure and critically ill patients. They have had a distinct focus on personalized and innovative treatments to meet complex patient needs.

The acquisition of the Bellco portfolio by Medtronic will be one of the foundations of Medtronic’s recently formed Renal Care Solution business, furthering Medtronic’s commitment to improve outcome, expand therapy access and optimize cost and efficiency.

 

 

VITAFLO®

www.vitaflo.co.uk

Vitaflo® International Ltd is at the forefront in developing innovative, clinical nutrition products for conditions such as paediatric kidney disease. Working in partnership with key opinion leaders worldwide, Vitaflo creates convenient products based on cutting edge research. We recognise that every individual has different requirements nutritionally and in terms of the demands of modern living. We aim to provide palatable, nutritionally up to date products whilst meeting the changing needs of patients throughout their life.
Vitaflo believes that the products are just one aspect of successful management and thus a range of services, from our nutritional helpline to the provision of scientific education meetings, are provided to support Healthcare Professionals in their practice.
Vitaflo is sponsoring the 5th International Paediatric Renal Dietitians Meeting, taking place as a satellite meeting of ESPN 2017.
You can also find Vitaflo in the exhibition hall.

 

 

CHIESI ORPHAN

 

Description

 

 

FERRING PHARMACEUTICALS LTD

www.ferring.co.uk

Ferring Pharmaceuticals is a multi-national company with corporate headquarters in Saint-Prex Switzerland; the organisation’s marketing, medical services and sales teams operate in more than 50 countries and employ over 4000 people throughout the world.

Ferring’s portfolio demonstrates an exceptionally innovative and successful track record in endocrinology, reproductive health – infertility and obstetrics, urology, gastroenterology and oncology. Ferring is a world leader in the research and development of peptides and hormone therapies, focusing on producing treatments that enable doctors to treat patients on the body’s own terms.

 

 

AMGEN

www.amgen.com

Amgen is committed to unlocking the potential of biology for patients suffering from serious illnesses by discovering, developing, manufacturing and delivering innovative human therapeutics. This approach begins by using tools like advanced human genetics to unravel the complexities of disease and understand the fundamentals of human biology.

Amgen focuses on areas of high unmet medical need and leverages its expertise to strive for solutions that improve health outcomes and dramatically improve people’s lives. A biotechnology pioneer since 1980, Amgen has grown to be one of the world’s leading independent biotechnology companies, has reached millions of patients around the world and is developing a pipeline of medicines with breakaway potential.

For more information, visit http://www.amgen.com and follow us on www.twitter.com/amgen.

     
     

 

BAXTER

www.baxterhealthcare.co.uk

For more than 50 years, Baxter has had a presence and long-standing commitment in the UK. We are one of the largest suppliers to the NHS with over 7,500 products and services.

Baxter UK has two main business areas: Hospital Products and Renal Products. Hospital Products provides intravenous (IV) solutions and specialty products used for fluid replenishment, anaesthesia, nutrition, pain management, antibiotic therapy and chemotherapy and surgical care products. Pharmacy compounding units are also run from this business. Renal provides products and services to treat patients with acute renal failure as well as end-stage kidney disease through hospital and home treatments.

We have a diverse customer base working with the NHS, private hospitals, homecare and other pharmaceutical companies.

 

 

ALEXION

www.alexionpharma.eu

Alexion is a global biopharmaceutical company focused on developing and delivering life-transforming therapies for patients with devastating and rare disorders. Alexion developed and commercializes Soliris® (eculizumab), the first and only approved complement inhibitor to treat patients with atypical hemolytic uremic syndrome (aHUS) and paroxysmal nocturnal hemoglobinuria (PNH), two life-threatening ultra-rare disorders. As the global leader in complement inhibition, Alexion is strengthening and broadening its portfolio of complement inhibitors, including evaluating potential indications for eculizumab in additional severe and ultra-rare disorders.

 

 

PFIZER                                                              

www.pfizerpro.co.uk/endocrinology

Pfizer is one of the world’s premier innovative biopharmaceutical companies, discovering, developing and providing over 100 different medicines, vaccines and consumer healthcare products that help save and transform the lives of millions of people in the UK and around the world every year.

For more than 25 years, Pfizer Endocrine Care has been committed to the advancement of endocrinology. This is demonstrated by our innovations in endocrine care: Pfizer UK was the first company to launch single-dose and multi-dose growth hormone (GH) delivery devices; it has built up the largest international databases of patients receiving GH therapy

Pfizer are supporting the personal practice session on the use of growth hormone in CKD .
Please come to find Pfizer in the exhibition hall.

 

 

NxSTAGE

www.nxstage.com

NxStage provides the life changing benefits of home hemodialysis to a wider range of patients than ever before, with a simple, flexible and portable home hemodialysis therapy solution specifically designed for the patient. NxStage is more than a company; we are leading the renal revolution. Our innovative products are helping to shape and transform renal care.

For more information on NxStage, please visit our stand in the exhibition hall.

 

 

SYNER-MED (PHARMACEUTICAL PRODUCTS) LTD

www.syner-med.com

Syner-Med (PP) Ltd has been bringing innovative pharmaceutical products and medical devices to healthcare professionals and patients for over 20 years.

Currently the Company is focused on the management of central venous catheters helping our customers to manage occlusions and reduce infections.

Syner-Med is committed to providing healthcare professionals with education, enabling them to deliver evidence based patient care and to use our products as cost effectively as possible.

 

 

BOERHINGER-INGELHEIM

www.boehringer-ingelheim.com

Innovative medicines for people and animals have for more than 130 years been what the research-driven pharmaceutical company Boehringer Ingelheim stands for. Boehringer Ingelheim is one of the pharmaceutical industry’s top 20 companies and to this day remains family-owned. Day by day, some 50,000 employees create value through innovation for the three business areas human pharmaceuticals, animal health and biopharmaceutical contract manufacturing.

Social responsibility comes naturally to Boehringer Ingelheim. That is why the company is involved in social projects such as the “Making More Health” initiative. Boehringer Ingelheim also actively promotes workforce diversity and benefits from its employees’ different experiences and skills. Furthermore, the focus is on environmental protection and sustainability in everything the company does.

More information about Boehringer Ingelheim can be found on www.boehringer-ingelheim.com.

 

 

MEDCOMP

www.medcompnet.com 

Medcomp® is the premier developer and manufacturer of cutting-edge vascular access devices that meet and exceed the clinical demands of today's medical specialties, particularly in the fields of interventional medicine, dialysis and oncology.

Medcomp’s engineering and applications expertise provides superior products for hemodialysis, peritoneal dialysis, oncology ports and PICCs/CVCs whose progressive designs accommodate advances in medicine and whose quality anticipates the requirements of our professional clients and the patients they serve. Currently one of the world’s largest manufacturers of dialysis and centrally terminating venous catheters, Medcomp is, and always has been, on the cutting edge of new vascular access device technologies.

 

 

LinC MEDICAL

www.linc-medical.co.uk 

LINC Medical Systems Ltd is an independent British company which, for over 19 years, has been an established supplier of paediatric renal equipment and devices to the NHS from its offices, warehouse and service centre in Leicestershire. Our independence means we can supply what you, the customer needs at competitive prices.

We have a dedicated and friendly team of Customer Service personnel, Product Specialists, Clinical Specialists and Technicians to serve you 365 days a year. 

Please visit our stand to find out about the latest products in our range:

Veinplicity Vascular access device
U-Lite hand held ultra-sound for Vascular access
HEMOdialert venous dislodgement alarm
Therapy chairs 
Plasma apheresis devices
Medbike exercise bikes 
DIMI Home therapies device
Joline Dialysis catheters
Peritoneal Dialysis catheters and kits

 

 

ULTRASOUND TECHNOLOGIES

www.doppler.co.uk  

Ultrasound Technologies Ltd have been designing and manufacturing medical diagnostic equipment in the UK for over twenty-five years. The Company is proud of its outstanding service in providing quality with economy, innovative design but with practical application. All products are approved to International Standards and backed by a 3-year warranty.
Please come along and see us at the European Congress for Renal Paediatric Services.

 

 

WISEPRESS

www.wisepress.com 

Wisepress.com, Europe’s leading conference bookseller, has a complete range of books and journals relevant to the themes of the meeting. Books can be purchased at the stand or, if you would rather not carry them, posted to you – Wisepress will deliver worldwide. In addition to attending 200 conferences per year, Wisepress has a comprehensive medical and scientific bookshop online with great offers.

 



 

NUTRICIA

www.eln.nutricia.co.uk

With over 100 years of caring for babies and 40 years of ongoing research into breastmilk and early life nutrition, Nutricia Early Life Nutrition combines science and experience to support parents, carers and healthcare professionals.

As a company, we continually strive to improve, whether in terms of our products for mothers, infants and toddlers; services to parents and healthcare professionals; or our contribution to the field of early life nutrition. That’s why our research never stops. At Nutricia Early Life Nutrition, we are committed to actively contributing to new scientific insights and discoveries in the field of early life nutrition.

 

 

 


 

Charitable and not-for-profit exhibitors

 

KIDNEY RESEARCH UK

www.kidneyresearchuk.org 

We are the UK’s leading kidney research charity with a long history in the field of paediatric research. For decades our developments in treatments, information for patients and our work in raising vital public awareness have been saving lives. Thanks to our amazing supporters we were able to invest £6.7 million into renal research in the last year. We are completing our merger with the charity Kids Kidney Research. Marking this, we have launched our new, dedicated £500k paediatric grants round, titled the ‘Kids Kidney Research Paediatric Research Awards’.

 

 

RCPCH & infoKID

www.infoKID.org.uk  

The Royal College of Paediatrics and Child Health (RCPCH) have a mission to transform child health through knowledge, innovation and expertise. The College is responsible for the training and examination of paediatricians and provide vital support to child health professionals based across the world.

The RCPCH offer access to a wide range of key resources, including infoKID. Developed in partnership the British Association for Paediatric Nephrology and the British Kidney Patient Association, infoKID is an online resource for families and covers a range of kidney conditions, symptoms, causes, diagnosis, treatment and management. Access high-quality content, developed by healthcare professionals, parents, carers and young people, at www.infoKID.org.uk

 

 

PKD CHARITY

www.pkdcharity.org.uk   

About 70,000 adults and children in the UK are thought to have Polycystic Kidney Disease (PKD). The PKD Charity was established in 2000 to help improve the lives of everyone affected by PKD, in particular by:
  • Offering personal support to patients, families and carers and organising patient, family and carer information, education and support events across the UK.
  • Funding research into determining the causes of PKD and into discovering treatments and a cure.
  • Promoting awareness of PKD through the production and publication of authoritative information for the general public and health professionals about the medical, healthcare and related aspects of PKD.

The majority of patients with PKD will have ADPKD (autosomal dominant PKD), the most commonly inherited kidney disease worldwide. ADPKD was historically regarded as an 'adult' condition but is recognised as symptomatic in childhood and young people who are increasingly being diagnosed at a young age, including during pregnancy. The remainder affected will have ARPKD (autosomal recessive PKD).

The availability and expansion of RaDaR (the national registry of rare kidney diseases) is providing exciting opportunities for the study of paediatric patients with ADPKD and ARPKD. The PKD Charity is keen to discuss collaboration with interested researchers and clinicians.

The PKD Charity will be joined at ESPN by PKD International, the global alliance of PKD patient support groups. Details of European groups will be available on the stand.

 

 

ALPORT UK

www.alportuk.org  

Alport UK: a charity empowering individuals and families with Alport Syndrome to enjoy the best possible quality of life

Alport Syndrome is a rare inherited disease that can cause kidney failure, deafness and eye abnormalities. Those that inherit it will probably require a kidney transplant when they are a teenager or in their early 20s. It can impact a large number of people in a family. It is the second most common form of inherited kidney disease.

Our mission: Working in partnership with individuals, families and the scientific community we will:

  • Facilitate a support network for patients and families
  • Be a conduit for high quality, accessible information
  • Raise the profile of Alport Syndrome in the scientific community
  • Contribute to the international research agenda
  • Collaborate on the development of a UK patient registry and alliance of international patient registries.

Funding four key areas of activity

  1. Support – Providing support for UK patients and families through a support network, website and family days.
  2. Information – Working with clinicians, individuals and families to educate them on more effective diagnosis and treatment, for example national guidelines for diagnosis, treatment and the best care for children, teenagers and adults.
  3. Research – Working with other National patient organisations and clinicians to design, develop and maintain an international research strategy and plan for Alport Syndrome
  4. Collaboration – Bringing together the scientific community to work across the different clinical disciplines that specialise in kidneys, ears, eyes, mental health, other rare disease areas with similar issues etc and working with the national patient organisations to share best practice with developed and developing countries.

 

 

BLADDER and BOWEL UK

www.bladderandboweluk.co.uk  

Bladder and Bowel UK (formerly PromoCon), working as apart of the charity Disabled Living,  provides impartial  advice, support and information on all bladder and bowel issues affecting  both adults and children.  It is run by a team of professionals and there is a dedicated helpline and website with a range of free downloadable resources for children, adults, parents, carers and professionals.  In addition to running an adult bowel and children’s continence special interest groups, we offer an annual national continence symposium and bespoke training packages. We also work in collaboration with the NHS, third sector organizations and the commercial sector to promote improvements in continence care across the UK.  We are involved in projects with NHS England, and the National Institute of Clinical Excellence (NICE) as well as having representation on professional bodies including the International Children’s Continence Society (ICCS), the Paediatric Continence Forum (PCF), and the Association for Continence Advice (ACA).

 

 

Patient View

www.patientview.org

PatientView transforms the levels of visibility and control a patient has over their personal health records.  Available in 90% of renal units in the UK, patients are able to view test results, letters, medication lists, etc. within 24 hours of their appointment.  Data is uploaded automatically from the hospital renal IT system through a secure UK renal data warehouse, which also links to the UK Renal registry and to RaDaR.  PatientView is built for mobility and ease of use and can be accessed at any point, from any location and on any mobile device. 

Find us exhibiting with RareRenal, PatientView, UK Renal Registry, Renal Association and BAPN in Hall 1

 

 

RaDaR

www.radar.nhs.uk

The National Registry of Rare Kidney Diseases (RaDaR) is a Renal Association initiative designed to pull together information from patients with certain rare kidney diseases. This will give a much better understanding of how these illnesses affect people. It will also speed up research.  Almost 15,000 patients have been recruited so far, from 90 hospitals. RaDaR draws information from PatientView, an online system which records renal patient’s results, medications and clinic letters.
Recruited patients are provided with a secure log-in to PatientView to access and check their own information online.

Find us exhibiting with RareRenal, PatientView, UK Renal Registry, Renal Association and BAPN in Hall 1


 

BAPN

www.renal.org/bapn

The British Association for Paediatric Nephrology is the UK professional group for paediatric nephrologists and is a division of the Renal Association.  Nearly all UK consultant and trainee paediatric nephrologists are members.  There is also a large number of members who are general paediatricians with a renal interest, known as SPINs.  The executive committee meet three times a year and officer roles reflect the different aspects of the BAPN’s work (clinical services, research, quality improvement and innovation, audit & registry).  The association holds two general meetings per year: in the spring/summer it joins with the Renal Association; in the winter it holds a separate BAPN meeting which now stretches over two days.

Find us exhibiting with RareRenal, PatientView, UK Renal Registry, Renal Association and BAPN in Hall 1


 

UK Renal Registry

www.renalreg.org

The UK Renal Registry (UKRR) is part of the Renal Association, a not for profit organisation registered with the Charity Commission. It is recognised as having one of the very few high quality clinical databases open to requests from researchers. The UKRR collects, analyses and reports on data from 71 adult and 13 paediatric renal centres. Participation is mandated in England through the NHS National Service Specification and the Chief Executive of each Trust is responsible for adherence to this contract. 
It is principally funded through an annual capitation fee levied on renal replacement therapy (RRT) patients.  Specified data are collected on a quarterly basis via an automatic download from renal unit databases and are published in the UK Renal Registry Annual Report. The sources of information (data and reports) held by the UKRR are a shared resource and are used to develop further research into kidney disease and improve the quality of care for renal patients.

Find us exhibiting with RareRenal, PatientView, UK Renal Registry, Renal Association and BAPN in Hall 1


 

RareRenal

www.rarerenal.org

The Information Standard accredited website RareRenal.org provides information for both patients and clinicians on the current RaDaR conditions. The website also provides details of patient support groups, personal stories and adverts for forthcoming patient information events.

Find us exhibiting with RareRenal, PatientView, UK Renal Registry, Renal Association and BAPN in Hall 1


 

Renal Association

www.renal.org

The Renal Association is the professional body for United Kingdom nephrologists and renal scientists. From its foundation in 1950, it has been active in promoting and disseminating research that may ultimately improve outcomes for patients with kidney disease. The Association has also taken a leading role in the education of clinicians and scientists interested in kidney disease. More recently, it has become more active in issues around training of doctors and the planning and development of clinical services. The Association has become increasingly aware of the importance of healthcare delivery by a multidisciplinary team and is affiliated with the British Renal Society, the umbrella organisation for healthcare and patient organisations with an interest in kidney disease.

Find us exhibiting with RareRenal, PatientView, UK Renal Registry, Renal Association and BAPN in Hall 1


 

Kidney Care UK

 

We are the UK’s leading kidney patient support charity, providing practical, financial and emotional support for kidney patients and their families and campaigning to improve care services across the UK. We provide support for more than 100 patients every week and invest over £3 million each year in patient grants. We provide practical and emotional support, funding patient research projects and improving care services. We’re here to give our total support to help improve the quality of life for everyone affected by kidney disease.

 

 

ERIC, the Children’s Bowel and Bladder Charity

www.eric.org.uk

ERIC is the only charity exclusively dedicated to the bowel and bladder health of all children and teenagers in the UK. We provide expert support, information and understanding to children and teenagers and enable parents, carers and professionals to help them establish good bowel and bladder health.  We continue to develop our expertise to ensure we can help even more families live better, fuller lives.

Our vision is that every child and teenager with a bowel or bladder condition can access support and live free from embarrassment, shame, isolation and fear.  The key services we provide in support of this are:

  • A dedicated helpline for families and professionals working with families and children to talk to an expertly trained childhood continence advisor
  • A website brimming with information on childhood bowel and bladder problems, including up to date, downloadable resources
  • Paediatric continence training for health professionals across the UK to raise standards of continence care
  • An online shop supplying a comprehensive range of life-transforming continence products

We campaign to raise awareness of the causes and treatment of children's bowel and bladder problems, to improve national paediatric continence services and the support available to children in education settings and the NHS.  In pursuit of ontinuous improvement we are members of national groups including the Paediatric Continence Forum, Excellence In Continence Care Group and Schools Health Alliance.


 

IPNA2019 Congress  

  www.ipna2019.org

The International Pediatric Nephrology Association (IPNA) boasts 1500 pediatric nephrologists and medical professionals from 103 different countries. The Association is committed to disseminating knowledge concerning kidney disease in children in areas where care is most needed. The IPNA Congress is held every three years; the next IPNA Congress will be held on October 17-21, 2019 in Venice (Italy). The IPNA Congress is a very important occasion to meet internationally renowned specialists, present new research projects and also a networking moment that will enable Association’s members to make decisions as per the next steps to be taken for the future of Pediatric Nephrology.

Our vision is that every child and teenager with a bowel or bladder condition can access support and live free from embarrassment, shame, isolation and fear.  The key services we provide in support of this are:

  • A dedicated helpline for families and professionals working with families and children to talk to an expertly trained childhood continence advisor
  • A website brimming with information on childhood bowel and bladder problems, including up to date, downloadable resources
  • Paediatric continence training for health professionals across the UK to raise standards of continence care
  • An online shop supplying a comprehensive range of life-transforming continence products

We campaign to raise awareness of the causes and treatment of children's bowel and bladder problems, to improve national paediatric continence services and the support available to children in education settings and the NHS.  In pursuit of ontinuous improvement we are members of national groups including the Paediatric Continence Forum, Excellence In Continence Care Group and Schools Health Alliance.

 

 

ERA-EDTA

http://web.era-edta.org/

With more than 7,000 members, the ERA-EDTA is one of the biggest nephrology associations worldwide leading European nephrology and one of the most important and prestigious European Medical Associations. It organizes annual congresses, it organizes and supports educational courses, it produces guidelines, collects data and performs epidemiological studies. It supports fellowships and research projects. Its publications are NDT and CKJ (open access). It also has a new online Educational platform: the European Nephrology Portal (ENP).

The 2018 Congress will be held in Copenhagen (Denmark) from May 24 to June 31.

Visit the booth to receive information on the next congress and on other current activities.