Mustafa ARICI, MD., is Professor of Medicine (Nephrology) at Hacettepe University in Ankara-TURKEY. He is an ERA-EDTA (European Renal Association-European Dialysis and Transplantation Association) Council Member since May 2015. He is a member of the Science Academy of TURKEY since 2014.
He undertook his undergraduate and postgraduate educations in Faculty of Medicine, Hacettepe University. He received his residency training in Internal Medicine (1992-1996) and served a fellowship in Nephrology (1997-2000) in the same faculty. He has awarded a training grant from International Society of Nephrology (ISN) and studied in the field of “proteinuria and renal fibrosis” for two years in the Department of Nephrology, University of Leicester, UK as an ISN fellow.
Dr. ARICI’s main research interests are concentrated on chronic kidney disease and hypertension with a special focus on mechanisms involved in progression of kidney disease, albuminuria and fibrosis, cardiovascular risks and complications in CKD and dialysis, epidemiology of hypertension and cardiorenal risks of sodium consumption.
He served as a “Member of Board” to Kidney Disease Improving Global Outcomes (KDIGO) from 2006 to 2009. He is an “Educational Ambassador” for International Society of Nephrology, a member of “KDIGO Implementation Task Force for Eastern Europe” and “Regional Advisory Group” for International Society of Hypertension. He represents Turkey in “World Hypertension League” and “World Action on Salt and Health”. He has been “General Secretary” of Turkish Society of Hypertension and Renal Diseases from 2005 to 2008.
He is the editor of the book “Management of Chronic Kidney Disease: A Clinician’s Guide” published by Springer. He is an editorial board member of “Kidney Research and Clinical Practice” since 2012. He is associate editor of “BANTAO Journal” since 2009. He serves as a “theme editor” for “Nephrology Dialysis and Transplantation” since 2017
He is married and father of two lovely daughter
Thursday 7th, 14:30 JOINT SESSION ERA-EDTA: Can we prevent cardiovascular disease developing in children and adults with kidney disease? Hypertension control and RAAS blockade: Lessons from adult studies and room for improvement in children?
Dr. David Askenazi
Friday 8th, 15:30 Improving the identification and outcomes for paediatric and neonatal acute kidney injury. Short and long –term outcomes of neonatal kidney disease
Saturday 9th, 08:45 Personal practice: How to recognize and optimally treat AKI in neonates
Dr. David Askenazi was born in Mexico City, Mexico. His family moved to El Paso, Texas when he was 8 years old. He trained at the University of Texas at Austin (Bachelor of Arts in Psychology), then at the University of Texas Medical Branch (Medical School), the Austin Pediatric Education Program (Pediatric Residency), Baylor College of Medicine (Pediatric Nephrology Fellowship) and University of Alabama at Birmingham (Masters of Science in Clinical Research). He is now Professor of Pediatrics at the University of Alabama at Birmingham and is the Founder and Director of the Pediatric and Infant Center for Acute Nephrology (PICAN) at Children’s of Alabama. He is the founder and chair of the steering committee for the Neonatal Kidney Collaborative (NKC), a group of neonatologist and nephrologist dedicated to improving outcomes in neonates at risk of acute kidney injury.
Dr. Georges Deschênes
Friday 8th, 09:30 ESPN WG session: The past, present and future of idiopathic nephrotic syndrome Treating idiopathic nephrotic syndrome...are steroids the answer?
Dr. Georges Deschênes, MD-PhD was the Head of Paediatric Nephrology at the Hospital Robert-Debre in Paris since September 2006 where he succeeded to Pr Chantal Loirat. He was trained by Pr Michel Broyer in hospital Necker from 1986 to 1990 and thenafter was Associate Professor successively in Tours and in Hospital Armand-Trousseau in Paris. His major focus in research was the Idiopathic Nephrotic Syndrome in Children for many years.
Dr. Olivier Devuyst
Thursday 7th, 15:00 JOINT SESSION ERA-EDTA: Can we prevent cardiovascular disease developing in children and adults with kidney disease? Uromodulin, kidney function and cardiovascular disease
Olivier Devuyst, MD, PhD, is Full Professor in Medicine and Physiology at the University of Zurich (Switzerland) and has joint appointments in the Division of Nephrology of the Saint-Luc Academic Hospital, UCL Medical School (Brussels).
Dr. Devuyst and his group investigate the molecular mechanisms of the transport of water and solutes across epithelia, and the pathophysiology of inherited renal tubular diseases and their progression. These studies, which have generated more than 300 peer-reviewed articles, are funded by national and international agencies, including the European Union and the NIH. Dr. Devuyst has been the laureate of several international prizes and has been elected at the Royal Academy of Medicine of Belgium in 2005. He is Associate Editor of Nephrology Dialysis Transplantation, Peritoneal Dialysis International, and Orphanet Journal of Rare Diseases, and he serves in the Editorial Board of Kidney International and Pflügers Archiv.
Dr. Lien Dossche
Enuresis and bladder dysfunction workshop
Lien Dossche obtained her medical degree (MD) at Ghent University in 2012 and started her pediatric residency subsequently at Ghent University Hospital. Since March 2015 she combines her clinical activities at the Department of Pediatric Nephrology (Ghent University Hospital), with a PhD studentship. Her main research focus is the role of desmopressin in the treatment of children with nocturnal enuresis.
Dr. Jochen H. H. Ehrich
The ESPN and evolution of renal care for children in Europe
Jochen H. H. Ehrich, Professor emeritus, Dr. med., D.C.M.T. (London) born on January 5th, 1946 in Braunschweig, Germany.
1965-1971 medical student in Berlin/Germany and Lausanne /Switzerland.
1971-1972 postgraduate student at London School of Hygiene and Tropical Medicine in London/UK.
1974-1979 postgraduate training in paediatrics at the Children’s Hospital of Hannover Medical School and subspecialisation in paediatrc nephrology.
1994-1997 Head of Paediatric Nephrology at the Charité Hospital, Humboldt University, Berlin
1998-2011 Head of Department of Paediatric Kidney, Liver and Metabolic Diseases at the Children’s Hospital of Hannover Medical School.
Clinical responsibilities: paediatric nephrology, hepato-gastroenterology, endocrinology, metabolic disorders, neurology and tropical diseases.
Research activities: kidney diseases in Europe and Africa, laboratory diagnosis of renal diseases, solid organ transplantation, nephrotic syndrome, growth failure.
Current research activities: diversity of child health care service systems in 46 European countries.
Dr. Emma received is Medical Degree and specialized in Pediatrics from the Catholic University of Louvain, Brussels, Belgium. He then completed his training in Pediatric Nephrology at Boston Children's Hospital, Harvard Medical School. In 1998, Dr Emma moved to the Bambino Gesù Children's Hospital - IRCCS, in Rome, where he has set-up the Nephrology Research Laboratory and was appointed Chief of the Division of Pediatric Nephrology in 2005. He currently holds the position of Head of the Department of Pediatric Subspecialties.
Dr Emma has authored more that 160 research articles in peer-reviewed journals and is the author of several textbook chapters and one of the editors of the Pediatric Nephrology textbook. He is currently a Council member of the IPNA (International Pediatric Nephrology Association) and the chair of the ESPN (European Society of Pediatric Nephrology) Working Group on Inherited Renal Disorders. His primary research interests are in rare renal diseases and nephrotic syndrome.
Dr. Francesco Emma
Saturday 9th, 09:15 Understanding tubular physiology to improve patient care The molecular basis of non-cystinotic Fanconi syndrome
Dr. John Feehally
Thursday 7th, 16:15 Global advancements in preventing and treating kidney disease. Still a long way to go
John Feehally trained in adult nephrology in Leicester & Manchester, UK and in Boston, USA. He worked in Leicester for 35 years where he is now Emeritus Consultant Nephrologist at University Hospitals of Leicester, and Honorary Professor of Renal Medicine at the University of Leicester, UK.
His particular clinical and research interests are in glomerulonephritis, especially IgA nephropathy.
He is co-editor with Juergen Floege and Richard Johnson of ‘Comprehensive Clinical Nephrology’ - now in its fifth edition.
He was President of the UK Renal Association [2004-07] and is Chair of Kidney Research UK.
He was President of the International Society of Nephrology [2011-2013], and is now ISN Programs Chair.
John can perhaps be considered an ‘honorary paediatric nephrologist’. His first major research papers concerned the immune system in nephrotic syndrome and IgA nephropathy in children, work in collaboration with Bob Postlethwaite and Jim Beattie in Manchester in the 1980s. At present he chairs ‘Saving Young Lives’ an initiative of ISN, IPNA and their partners to make acute PD available for children with AKI in very low resource settings.
Dr. Oliver Gross
Thursday 7th, 12:00 Advances in the diagnosis and treatment of Alport syndrome and thin membrane disease Therapeutic options in Alport syndrome
Dr. Gross is Professor of Internal Medicine at University of Goettingen, and head attending Nephrologist. Dr. Gross is recognized as a leader in the field of type IV collagen diseases and collagen receptors with numerous original articles on potential therapies of extracellular matrix diseases such as Alport syndrome, including studies of murine type IV collagen knockouts. He is Initiator and Coordinating Principal Investigator of the world’s first clinical trial in children with Alport syndrome EARLY PRO-TECT Alport. The placebo-controlled trial assesses the safety and efficacy of ramipril. He founded the European Alport Registry. Dr. Gross has authored numerous original research articles, reviews and book chapters on type IV collagen diseases. He has lectured on these topics at numerous institutions and meetings, both nationally and internationally.
Dr. Dieter Haffner
Thursday 7th, 08:00 Personal practice: Optimising growth in CKD
Dieter Haffner is currently Professor and Head of the Department of Pediatric Kidney, Liver and Metabolic Diseases at the Hannover Medical School, Germany. After his training in Pediatrics and Nephrology at the University Children’s Hospital in Heidelberg he was Consultant at the Department of Pediatric Nephrology at the Charité Hospital in Berlin (2000-2004), and Head of the Department of Pediatrics at the University of Rostock (2005-2011). His major research focus is on the pathophysiology and treatment of rare renal diseases, e.g. X-linked hypophosphatemia, autosomal-recessive polycystic kidney disease, and cystinosis. He perfoms translational reaseach projects on chronic kidney disease (CKD) associated complications, e.g. growth failure and CKD mineral and bone disorders (CKD-MBD), and is coordinating the ESPN working group on CKD-MBD
Dr. Wesley Hayes
Wesley is a consultant paediatric nephrologist at Great Ormond Street Hospital, having previously trained and worked as an engineer in Germany and Australia. His research interests include the application of new technologies to improve outcomes for children receiving dialysis, and following kidney transplantation.
Dr. Daljit K Hothi
Dr. Hothi is a Consultant Paediatric Nephrologist and clinical lead for Home Haemodialysis (HD) at Great Ormond Street Hospital. HD has been her passion and interest for many years. She completed her MD in Paediatric HD split between two sites, Sick Kids Toronto and Great Ormond Street Hospital (GOSH). She then secured funding for a 4 year Home HD pilot at GOSH but was successful in achieving substantive status at the end of year 2. As a team they have trained and recruited in excess of 40 patients to date, the largest paediatric cohort internationally. Her ambition now is develop an International Paediatric Home Haemodialysis Network.
Dr Hothi is Clinical Improvement and Patient Safety Expert. She has led on a number projects including the ‘Shine project; active reporting of patient safety incidents and near misses on the renal ward by involving families and patients.’ This project won the HSJ National Ward 2013 Patient Safety and was shortlisted for the BMJ Awards 2014 – Innovation Team. She was also the lead for the EQuIP (Enabling Clinicians in Quality Improvement and Patient Safety) training programme which was nominated for the HSJ education Award 2014 and 2015. She is now the Associate Medical Director for Quality, Safety & Patient Experience.
Consultant in Pediatric Nephrology, Aarhus University Hospital, Skejby, Aarhus, Denmark
Assistant Professor in Pediatrics, Aarhus University, Aarhus, Denmark
PREVIOUS TITLES AND TRAINING:
Medical studies at Aristotelio University,
Thessaloniki, Greece, 1989–1996
Research Fellowship in the Pediatric Research Laboratory,
Aarhus University Hospital, Skejby, Aarhus, Denmark, 1998–1999
Research fellow department of Pediatrics, Aarhus University Hospital, Skejby, and Clinical Institute,
Aarhus University, Aarhus, Denmark, 1999–2003
PhD studies at the University of Aarhus, Skejby, Aarhus, Denmark:
“Pathophysiological Aspects of Monosymptomatic Nocturnal Enuresis”, 2000–2003 (PhD defended in 2004)
Training in Pediatrics, Department of Pediatrics,
Aarhus University Hospital, Skejby, Aarhus, Denmark, 2003–2010
Training in Pediatric Nephrology, Department of Pediatrics, Section for Nephrology and Urology,
Aarhus University Hospital, Skejby, Aarhus, Denmark, 2010–2013
Honorary clinical fellowship at the Nephrology Department,
Great Ormond Street Hospital, NHS Trust, London, UK, 2013–2014
Consultant for Bladder Service Evelina Children’s Hospital NHS Trust London UK 2017
Dr. Konstantinos Kamperis
Enuresis and bladder dysfunction workshop
Dr. rer. nat. Maren Leifheit-Nestler
Friday 8th, 10:00 ESPN WG session: The past, present and future of paediatric CKD and bone disorders New insights of FGF23/Klotho system in CKD
07/2014 – present Project leader for biological safety (S1) in accordance with § 15 GenTSV, Clinic of Pediatric Kidney, Liver and Metabolic Diseases, Pediatric Research Center, Hannover Medical School
05/2012 – present Project leader responsible for directing animal experiments in accordance with FELASA Category C, Clinic of Pediatric Kidney, Liver and Metabolic Diseases, Pediatric Research Center, Hannover Medical School
01/2012 – present Research Scientist, Clinic of Pediatric Kidney, Liver and Metabolic Diseases, Pediatric Research Center, Hannover Medical School Major focus: Cardiovascular and bone disease in chronic kidney disease, cardiac remodeling, left ventricular hypertrophy, myocardial fibrosis, FGF23 Signaling, mouse and rat models, clinical studies
01/2009 – 12/2011 Project leader and responsible for biological safety (S2) in accordance with § 15 GenTSV, Department of Cardiology and Pneumology, Prof. Dr. med. Gerd Hasenfuß, Heart Research Center, University Medicine Göttingen
05/2006 – 12/2011 Research Scientist, Department of Cardiology and Pneumology, Group Atherosclerosis and Vascular Biology, Frau Prof. Dr. med. Katrin Schäfer, Heart Research Centre, University Medicine Göttingen Major focus: Cardiovascular biology, cardiac hypertrophy, endothelial function, angiogenesis
Dr. Rachel Lennon
Thursday 7th, 11:30 Advances in the diagnosis and treatment of Alport syndrome and thin membrane disease Mechanisms underpinning Alport syndrome which will improve patient care
Rachel Lennon graduated from Nottingham University Medical School in 1994. She trained in clinical paediatrics in Nottingham, London and the South
Western Deanery and she completed subspecialty training in Paediatric Nephrology in Bristol. She was awarded a Wellcome Trust Research Training
Fellowship in 2004 to train in Peter Mathieson and Moin Saleem’s laboratory where she completed her PhD studying circulating mediators of kidney disease. Rachel was appointed to an NIHR Academic Clinical Lectureship in 2007 and in 2008 she began working in Martin Humphries’ laboratory at the Wellcome Trust Centre for Cell-Matrix Research in Manchester. In 2010 she was awarded a Wellcome Trust Intermediate Clinical Fellowship to establish her research group. Rachel’s research is focused on understanding mechanisms of glomerular disease, the leading cause of chronic kidney disease in adults and children. Her overarching research question concerns how the glomerular filtration barrier or ‘kidney filter’ is regulated in health and disrupted in disease. During the intermediate fellowship, Rachel’s group developed methods to apply discovery proteomics to investigate the composition and assembly of matrix in the kidney filters. In 2016 Rachel was awarded a Wellcome Trust Senior Research Fellowship in Clinical Science and over the next 5 years her work will focus on the molecular regulation of force in the kidney filter. Rachel combines her academic work with clinical duties as a Consultant Paediatric Nephrologist at the Royal Manchester Children’s Hospital.
Dr. Elena Levtchenko
Friday 8th, 12:00 ESPN WG session: The past, present and future of inherited renal disorders Treatment, mechanism and prognosis of nephrogenic diabetes insipidus
JOINT SESSION EWOPA, 16:30 Renal replacement therapy in children with a severe mental disability
Dr. Levtchenko received her MD degree in Moscow State University and a Master Degree in Medical and Pharmaceutical Research in the Free University of Brussels. She was trained in Paediatrics in Brussels, Belgium followed by Paediatric Nephrology training in Nijmegen, The Netherlands. Her PhD study “Cystinosis: improved medical care and new insights into pathogenesis” was performed under the leadership of prof. L. Monnens in Radboud University Nijmegen. In 2008 Dr. Levtchenko accepted a position of Adjunct-Head of the department of Pediatric Nephrology in the University Hospitals Leuven, Belgium and starting from 2011 has become the head of this department. She is a full professor of Paediatrics in the Katholieke Universiteit (KU) Leuven and a Clinical Investigator of Flemish Research Foundation.
Dr. Levtchenko’s work, described in over 170 original publications and several book chapters, is mainly focused on unraveling the disease mechanisms and improving clinical care of children with genetic renal disorders. She is a Secretary General of European Society of Pediatric Nephrology (ESPN) and a board member of the ESPN working group on Inherited Renal Disorders and executive board member of the International Paediatric Nephrology Association.
Dr. Christoph Licht
Thursday 7th, 15:00 New ways of modifying the immune system to treat kidney disease Translating results of comprehensive complement studies into clinical practice
Friday 8th, 15:30 Advances in C3 glomerulopathies and dense deposit disease Pathogenesis of C3G: from bench to bedside
I am Associate Professor of Paediatrics at the University of Toronto and Staff Physician in the Division of Nephrology, The Hospital for Sick Children (SickKids). In addition, I am Senior Associate Scientist in the Cell Biology Program of the SickKids Research Institute. I am also cross appointed as Associate Member to the Institute of Medical Science (IMS) and Laboratory Medicine and Pathobiology (LMP) of the University of Toronto.
My research focuses on complement-mediated renal diseases such as atypical hemolytic-uremic syndrome (aHUS) and membranoproliferative glomerulonephritis (MPGN) / C3 glomerulopathy (C3G). My research has translational character and includes both clinical and basic research: I have established an international registry with biorepository (www.kidcom.ca). In addition, I have also established a basic research program focusing on the pathogenesis of complement-mediated thrombotic microangiopathy (TMA). In particular, I am investigating the consequences of complement activation on endothelial cells, platelets and neutrophils, and the interaction of these cells in TMA pathogenesis. The results of my research can change our understanding of the pathophysiology of aHUS and may ultimately allow for the development of new treatment strategies not only for aHUS but also other complement-mediated diseases.
I am the chair of HUS International (HUSi), and chair of the International aHUS Registry. I serve on the editorial board of Kidney International, Nephrology Dialysis and Transplantation and Pediatric Nephrology, and have published numerous peer-reviewed articles and book chapters related to my research focus.
Dr. Max Liebau
Saturday 9th, 08:45 Cystic kidney disease/ciliopathies. What have we learnt and where are we going? Therapeutic options in treating cystic kidney disease
Max Liebau, MD, is a trained pediatric nephrologist and a consultant at the Department of Pediatrics at the University Hospital of Cologne. He combines his clinical training with his experience in cellular and molecular biology during a postdoc in the Nephrology Research Laboratory in Freiburg and Cologne. His group follows a translational approach to study genetic kidney diseases with a special focus on Autosomal Recessive Polycystic Kidney Disease (ARPKD) as a model for ciliopathies. The lab currently works on cellular and molecular mechanisms underlying ARPKD and other ciliopathies. The research group also recently established the international ARPKD registry study ARegPKD. This project aims to provide an observational evidence base for unified clinical treatment concepts and the establishment of clinical and biomarkers predicting the risk of early and progressive disease. ARegPKD furthermore aims to lay the foundation for innovative translational research toward novel therapeutic targets, and to pave the way for clinical trials for this severe renal disorder of early childhood. Dr Liebau received multiple national and international honors and awards, including the Adalbert-Czerny-Award, the highest scientific award in German Pediatrics.
Dr. Melissa Little Friday 8th, 14:45
Rebuilding a kidney from patient stem cells: what will the future look like?
Professor Melissa Little is the Theme Director of Cell Biology at the Murdoch Childrens Research Institute in Melbourne, Australia, Program Leader of Stem Cells Australia, University of Melbourne and President of the Australasian Society for Stem Cell Research. She is internationally recognised for her work on the systems biology of kidney development and also her pioneering studies into potential regenerative therapies for kidney disease. This has resulted in the identification of factors capable of reprogramming to kidney and protocols for the directed differentiation of human pluripotent stem cells to kidney organoids.
Dr. Stephen D Marks
Saturday 9th, 08:45 Transplanting the untransplantable child Blood group and HLA incompatible renal transplantation
Dr Stephen D Marks, MD MSc MRCP DCH FRCPCH, is a consultant paediatric nephrologist and clinical lead for renal transplantation at Great Ormond Street Hospital for Children NHS Foundation Trust in London, UK which is one of the largest paediatric renal transplantation centres in the world. His research continues to date in the fields of renal transplantation (including innovative drug trials concerning new anti-rejection therapies and assessment of children post-renal transplantation), systemic lupus erythematosus and vasculitis (including studies of the aetiopathogenesis, management and outcome of childhood onset SLE and lupus nephritis) and hypertension (including genetic linkage as well as clinical and familial studies of renovascular hypertension). He is a member of the European Society for Paediatric Nephrology, International Pediatric Hypertension Association, International Pediatric Nephrology Association and International Pediatric Transplantation Association. He is transplant associate editor for “Pediatric Nephrology”, which is the journal of the International Pediatric Nephrology Association and on the editorial board for both “British Journal of Renal Medicine” and “Pediatric Transplantation”, which is the journal of the International Pediatric Transplant Association (IPTA). Having been chair of the Publications and Communications Committee, he is now a Councilor of IPTA.
Dr. Michal Maternik
Enuresis and bladder dysfunction workshop
Michal Maternik graduated from Medical University of Gdansk in 2002. He has completed his PhD studies “Bladder function influence on development of obstructive nephropathy in boys with posterior urethral valve” in 2008. He became a specialist in Paediatrics in 2009 and has been consultant in Nephrology since 2013 and Pediatric Nephrology in 2016 at Department of Pediatrics, Nephrology and Hypertension Medical University of Gdansk. He is running Enuresis Clinic in this Institution.
He is involved in organization of several Courses in pediatric incontinence in Poland. Since 2010 he is Regional Representatives of International Childrens’ Continence Society in Central Europe.
He was member of experts group of Polish Ministry of Health who published National Guidelines in Diagnosis and Treatment for Nocturnal Enuresis in 2012 and National Guidelines in Diagnosis and Treatment for Daytime Incontinence in 2014.
Dr. Jeffrey H. Miner
Thursday 7th, 10:15 The glomerular basement membrane – friend or foe?
Dr. Jeffrey H. Miner, Ph.D., FASN, is Professor of Medicine and Director of Basic Research in the Division of Nephrology at Washington University School of Medicine in St. Louis, Missouri. He has led an active research lab since 1996 and has co-authored over 150 primary research papers. He is internationally recognized for his studies of glomerular basement membrane components and their roles in glomerulogenesis and glomerular disease, in particular the paediatric diseases Alport syndrome and Pierson syndrome. He has also studied cell polarity/scaffolding proteins that affect the function of the ureter and its connection to the bladder. He received the American Society of Nephrology’s Young Investigator Award in 2004. He chaired the ASN’s Biosciences Research Group and was a member of the ASN Board of Advisors. He has reviewed grants for numerous US and international funding agencies and has chaired the American Heart Association’s CardioRenal Basic Science 3 grant review panel. He is a member of the Editorial Boards of the Journal of Clinical Investigation, the Journal of the American Society of Nephrology, Kidney International, and Matrix Biology.
Dr. Tryggve Nevéus
Friday 8th, 08:00 Personal practice: Therapy-resistant enuresis
Medical studies at Uppsala University, Uppsala, Sweden. Graduated 1990.
Recidency, paediatrics, completed 1999 at Uppsala University Children’s Hospital, Sweden.
Postspecialist education in paediatric nephrology at Uppsala University Children’s Hospital, Uppsala, and Sahlgrenska University Hospital, Gothenburg, Sweden, completed 2001.
Senior Consultant in Paediatric Nephrology and head of section for Paediatric Nephrology at Uppsala University Children’s Hospital, Uppsala, since 2001.
Research and teaching
PhD thesis in the field of enuresis research presented and accepted 1999.
Associate Professor in Paediatrics at Uppsala University since December 2003. Senior Lecturer since 2009, Associate Head of the Department of Women’s and Children’s Health at Uppsala University since 2010.
Principal author of at present approximately 70 original articles, excluding abstracts etc.
Main author – together with professor von Gontard – of the first modern handbook on disorders of bladder and bowel control in childhood.
Author of the enuresis chapters in several international handbooks of paediatric urology.
Numerous lectures and courses in Sweden and abroad. Main author of several reviews and clinical guidelines.
Section editor (urinary tract) for the periodicals Pediatric Nephrology and Journal of Pediatric Urology.
Previous Secretary General and current President of the Swedish Enuresis Academy
Secretary General of the International Children’s Continence Society (ICCS), from 2006 to 2012. President of the ICCS since 2014.
Born in Uppsala, Sweden in the year 1965. Dedicated traveller, amateur writer, illustrator and choir-singer. Fluent in English, good proficiency in French, Italian, Spanish and German. Lives with a wife, a son and two cats
Dr. Louise Oni
Thursday 7th, 17:00 Young nephrologists’ session Becoming a new paediatric nephrologist and balancing clinical work, clinical and lab research and family..!
Dr. Louise Oni is a National Institute of Health Research (NIHR) clinical academic lecturer in paediatric nephrology based at Alder Hey Children’s Hospital in Liverpool in the North West of England, UK. She is currently transitioning into a senior clinical academic post with honorary clinical consultant paediatric nephrology responsibilities.
She has an interest in children’s inflammatory diseases, in particular lupus nephritis and IgA vasculitis (HSP). Louise has an active programme of translational research looking into ways to improve the care and understanding of children with such conditions. Locally she leads scientific work to understand these inflammatory diseases aimed at identifying new opportunities for better treatment. She works closely with leaders from across the UK and the rest of the world and welcomes collaboration.
Dr. Ozan Özkaya
Friday 8th, 08:00 Personal practice: The child with a kidney stone
Ozan Özkaya completed her residency and her pediatric nephrology fellowship at Gazi University. After her fellowship, she joined Ondokuz Mayıs University School of Medicine in 2002. She served as the director of Division of Pediatric Nephrology for 12 years. She was then appointed at İstinye University Hospital at 2017. She has been one of the principal investigators of Turkish Renal Stone Study group. She has published more than 90 papers in pediatric nephrology and rheumatology with more than 1500 citations. Her areas of interests are renal stone diseases, Henoch-Schönlein nephritis, acute kidney injury and familial Mediterranean Fever.
Dr. Fabio Paglialonga
Pediatric Nephrologist at the Pediatric Nephrology and Dialysis Unit, Fondazione IRCCS Ca’ Granda Ospedale Maggiore Policlinico, Milan, Italy.
He earned his medical degree from the University of Milan Medical School and completed his internship and post-doctoral fellowship in Pediatrics at the University of Milan Medical School.
From 2007, medical assistant at the Pediatric Nephrology and Dialysis Unit, Fondazione Policlinico, Milan, Italy: he is currently responsible for the extracorporeal dialysis and therapeutic apheresis service of this Unit.
His main areas of interest are the assessment of dry weight and cardiovascular status of children on chronic hemodialysis, the management of the vascular access for hemodialysis in pediatrics, and therapeutic apheresis techniques (plasma exchange and immunoadsorption).
Dr. Sir Munir Pirmohamed
Saturday 9th, 11:30 Personalized and precision medicine in paediatric nephrology Pharmacogenomics and personalised medicine
Professor Sir Munir Pirmohamed (MB ChB, PhD, FRCPE, FRCP, FBPhS, FMedSci) is currently David Weatherall Chair in Medicine at the University of Liverpool, and a Consultant Physician at the Royal Liverpool University Hospital. He is also the Associate Executive Pro Vice Chancellor for Clinical Research for the Faculty of Health and Life Sciences. He also holds the only NHS Chair of Pharmacogenetics in the UK, and is Director of the M.R.C. Centre for Drug Safety Sciences, Director of the Wolfson Centre for Personalised Medicine and Executive Director, Liverpool Health Partners. He was awarded a Knights Bachelor in the Queen’s Birthday Honours list in 2015. He is also an inaugural NIHR Senior Investigator, and Fellow of the Academy of Medical Sciences in the UK. He is also a Commissioner on Human Medicines. His research focuses on personalised medicine in order to optimise drug efficacy and minimise toxicity, move discoveries from the lab to the clinic, and from clinic to application. He has authored over 420 peer-reviewed publications, and has a H-index of 85.
Dr. Sophie Ploos van Amstel
Saturday 9th, 12:30 ESPN registry session IPNA Registry: challenges and promises of a global RRT registry
Sophie recently got her medical degree at the University of Amsterdam in the Netherlands. Already during her medical training Sophie performed a study in the field of pediatric nephrology, which was published in cJASN. 1
In august 2016, Sophie started working as a PhD student in the department of Medical Informatics at the AMC. Under supervision of professor Kitty Jager, professor Franz Schaefer and dr. Marlies Noordzij, she is working on the establishment of the new IPNA Global Registry for Children treated with Renal Replacement Therapy. Her PhD thesis will consist of studies based on the data from the IPNA Registry in which we will compare the occurrence (epidemiology), patient profile, treatment patterns, and outcomes among children on RRT between countries around the world.
Dr. Ann Raes
Thursday 7th, 09:15 ESPN WG session: The past, present and future of paediatric CAKUT, UTI and bladder disorders Bladder dysfunction in the paediatric recipient
Ann Raes is clinic head of the department of paediatric nephrology at the Ghent University Hospital, Belgium. She is full professor at the faculty of Medicine and health sciences at ghent University. Dr Raes’s special fields of interest are CAKUT, CKD, pediatric renal replacement techniques (acute and chronic), pediatric transplantation, bladderdysfunction and pediatric drug research. She is a member of different multi-disciplinary teams (pediatric urology and nephrology; paediatric- adult nephrology; incontinence) at the Gent University Hospital. She is a member of various medical international and national associations (Belgian Society of nephrology, ESPN, IPNA etc..). She is board member of the ICCS and coordinator of the CAKUT working group of the ESPN. She is a reviewer for several paediatric journals, presented different papers at national and international meetings and (co-)authored several publications in peer-reviewed journals.
Dr. Søren Rittig
Enuresis and bladder dysfunction workshop
Søren Rittig graduated from Aarhus University Medical School in 1987. He completed a Research Fellowship at Aarhus University, Clinical Institute and Northwestern University Medical School, Dept. of Medicine, Chicago, USA. He became a specialist in Pediatrics in 2002 and has been consultant in Pediatric Nephrology at Aarhus University Hospital, Aarhus Denmark since 2004. In 2010 he defended his thesis on circadian regulation of urine output in normal children and children with nocturnal enuresis. He became full Professor in Pediatrics, Aarhus University in 2012. He has been heavily involved in research in childhood incontinence focusing on bladder dysfunction and enuresis pathophysiology; e.g. the description of a deficient circadian rhythm of vasopressin secretion in nocturnal enuresis that is correctable with administration of the vasopressin analogue desmopressin. Since 1992, he has also been involved in molecular genetic research of inherited forms of diabetes insipidus and other renal tubular disorders and his laboratory has contributed with description of many mutations in familial diabetes insipidus. Søren Rittig has published app. 160 peer reviewed papers, 6 book chapters, and co-edited several supplements in International journals. Furthermore, he has supervised 20 PhD programmes. Since 1999, he has been director of Center for Child Incontinence in Aarhus and he is the current Scientific Chairman of the International Children’s Continence Society (ICCS). He also currently holds the post as Board member of the European Society for Paediatric Nephrology (ESPN).
Dr. Fernando Santos
Saturday 9th, 08:45 Understanding tubular physiology to improve patient care Distal Renal Tubular Acidosis
Major fields of clinical and research interest in Paediatric Nephrology:
- Growth in chronic renal failure: growth plate in animal models
- Primary tubulopathies: Distal renal tubular acidosis, X-linked hypophosphatemia, Gitelman's syndrome
Dr. Franz Schaefer
Saturday 9th, 10:15 Digital and global medicine: Organisation and benefits from global networks and multicentre trials
Dr. Franz Schaefer is Professor of Pediatrics and Chief of the Pediatric Nephrology Division at Heidelberg University Hospital. Prof. Schaefer received his M.D. in 1986 at Würzburg University Medical School. He performed research scholarships at the Institute of Child Health, London, the University of Virginia and Stanford University.
His research interests include the genetic basis of hereditary kidney diseases, the physiopathology and prevention of kidney disease progression, the cardiovascular, metabolic and endocrine consequences of kidney disease in children, and the mangement of end-stage kidney disease by renal replacement therapy.
He conducted numerous collaborative clinical trials and established several international research consortia including the European Study Group for Progressive Chronic Kidney Disease in Children (ESCAPE), and the International Pediatric Dialysis Network (IPDN). Furthermore, Prof. Schaefer has coordinated the European registry for pediatric dialysis and transplantation for six years and is the current chair of the Global IPNA Registry for pediatric renal replacement therapy.
Prof. Schaefer has a special interest in rare disease research. He established the PodoNet Project for Research in Steroid Resistant Nephrotic Syndrome and coordinates the EURenOmics Consortium for High-Throughput Research in Rare Kidney Diseases. He is a member the Scientific Advisory Board of the Global aHUS Registry. Recently he founded the European Rare Kidney Disease Reference Network (ERKNet), a consortium of 38 European Reference Centers dedicated to improve the knowledge and clinical management of rare kidney disorders from diagnosis to innovative therapies.
Dr. Schaefer has published more than 500 scientific articles and book chapters, is co-editor of the standard textbooks ‘Pediatric Kidney Disease’ and ‘Pediatric Dialysis’ and is Associate Editor of two leading nephrology journals.
Dr. Rukshana Shroff
Friday 8th, 12:00 ESPN WG session: The past, present and future of paediatric dialysis Hemodiafiltration: is this a superior dialysis modality for children?
Rukshana Shroff, MD, FRCPCH, PhD, is a Consultant in Paediatric Nephrology at Great Ormond Street Hospital for Children and Reader at University College London. Her research focuses on cardiovascular disease in childhood chronic kidney disease (CKD), including laboratory work, clinical research studies and clinical trials. She is the PI on a multicentre study comparing long-term outcomes of conventional hemodialysis and hemodiafiltration in children. She currently holds a senior fellowship from the National Institute for Health Research (NIHR) to continue research into mineral dysregulation in CKD. She has published more than 130 original articles, reviews and book chapters in the fields of nephrology and dialysis. Dr Shroff has served on the recent KDIGO CKD-MBD guideline update group and two guideline committees for the National Institute for Health and Care Excellence (NICE). She is on the Council for the European Society for Pediatric Nephrology. She is currently an Associate Editor for Pediatric Nephrology and serves on the editorial board of the Clinical Journal of the American Society of Nephrology.
Dr. Ana Teixeira
Thursday 7th, 17:00 Young nephrologists’ session Becoming a new paediatric nephrologist and balancing clinical work, clinical and lab research and family..!
Pediatrician, consultant in Pediatric Nephrology Unit of Hospital São João (Porto, Portugal) since 2010. Professor of Pediatrics in Porto Medical School.
Active member of Pediatrics Portuguese Society, European Society for Pediatric Nephrology and International Pediatric Nephrology Association.
Council Member of Portuguese Society of Pediatric Nephrology. ESPN Junior Representative in IPNA.
Dr. Yincent Tse
Yincent Tse is the current Secretary of the British Association for Paediatric Nephrology @BAPNnephrology. He is a technophile and launched the BAPN into the internet age. In preparation for ESPN 50th anniversary he established a video archive of European paediatric nephrology for posterity. He works in Newcastle Upon Tyne in the North East of England having trained in Edinburgh, Newcastle and Great Ormond Street Hospital, London. He is a champion of quality improvement (QI) in healthcare and is the QI lead for the Royal College of Paediatrics and Child Health.
Dr. Kjell Tullus
Saturday 9th, 12:00 ESPN WG session:The past, present and future of paediatric immune mediated renal disorders The past, present and future of paediatric lupus nephritis
Dr Tullus is a consultant Paediatric Nephrologist at Great Ormond Street Hospital for Children in London. He graduated at the Karolinska Institute, Stockholm and got his medical training in Stockholm, Sweden. He worked as a Paediatrician and Paediatric Nephrologist in Sweden, close to thirty years. He has worked in London since 2002.
His main clinical interests are inflammatory diseases like lupus and renal vasculitis, hypertension and UTI. He has tutored 5 PhD students and written more than 250 scientific papers and reviews and they have been cited more than 4900 times.
Dr. Nicole van de Kar
Friday 8th, 11:30 Advances in the diagnosis and treatment of TMA/HUS in children Personalisation of eculizumab therapy in atypical HUS
Nicole van de Kar, MD,PhD, is working as pediatric nephrologist at Amalia Children’s Hospital Radboudumc Nijmegen , the Netherlands. In 1990 she started her career as PhD student on the pathogenesis of the hemolytic uremic syndrome (HUS). At that time the Shiga toxin producing E.coli bacteria was just recognized as being the cause of the so called ‘typical’ HUS. Since her PhD she has been actively involved in research in the hemolytic uremic syndrome. Since its establishment in 2000 at the ESPN in Helsinki, she is a member of the HUS International Working group on HUS. Under her guidance, the CUREiHUS study in the Netherlands has recently started. In this CUREiHUS study the DUTCH guidelines of treatment of atypical HUS , children and adults, in all University Medical Centers will be monitored.
Dr. Charlotte Van Herzeele
Enuresis and bladder dysfunction workshop
Charlotte Van Herzeele, PhD, is Pediatric Psychologist at the University Hospital Ghent, Belgium, and postdoctoral researcher at the Ghent University, Belgium. She obtained a master in clinical Psychology at Ghent University and a PhD in Medical Sciences at the Ghent University. She is trained in Psychological assessment of children by the Interuniversity Education network, Brussels University, Belgium. Her primary research interest is the treatment of nocturnal enuresis with special emphasis on sleep, adherence and psychological comorbidities.
Dr. Alan R Watson
The ESPN and evolution of renal care for children in Europe
He graduated from Edinburgh University, Scotland and trained in paediatrics in Edinburgh and Durban, South Africa. His paediatric nephrology training was at the Royal Manchester Children’s Hospital, UK and The Hospital for Sick Children, Toronto, Canada. He moved to Nottingham, UK in 1985 and single-handedly set up a supra-regional children’s renal unit where he was unit director for 25 years. He promoted single unit working with urology colleagues and the development of a multiprofessional team to support patients and families throughout childhood into adulthood. Despite the large clinical and administrative load, Prof Watson has undertaken extensive research and published on antenatal urinary tract abnormalities, urinary tract infection, chronic kidney disease, transplantation and psychosocial issues. He founded and chaired a European Paediatric Dialysis Working Group and both local and national ethics of clinical practice committees. He has been an ESPN and IPNA counsellor and involved in the organisation of many international meetings. He was the instigator and lead author on consensus guidelines on transition between IPNA and ISN societies.
Dr. Nick Webb
Thursday 7th, 09:15 Have clinical trials changed paediatric nephrology practice? And late breaking clinical trials Which trials are needed in paediatric nephrology and how can these be realised?
Biography: Professor Nick Webb graduated in medicine from the University of Nottingham in 1986 and trained in Paediatric Nephrology in Melbourne, Brisbane, Toronto and Manchester. He was appointed Consultant Paediatric Nephrologist at the Royal Manchester Children's Hospital in 1994 and promoted to Honorary Professor in Paediatric Nephrology at the University of Manchester in 2013. He is a Fellow of the Royal College of Physicians and a Fellow of the Royal College of Paediatrics and Child Health. He has extensive experience in all areas of Paediatric Nephrology, though holds a subspecialty interest in childhood nephrotic syndrome, kidney transplantation, chronic kidney disease and hypertension. His current personal NIHR research grant income is £4.15m and he has written more than one hundred peer reviewed medical publications. His major area of research interest is in clinical trials of new medicinal products in children with renal disease. He is Chief Investigator of the PREDNOS and PREDNOS 2 studies, HTA-funded national multicentre trials comparing different prednisolone regimens for the treatment of children presenting with nephrotic syndrome and Co-Investigator of the EME-funded ECUSTEC study, investigating the role of eculizumab in Shiga toxin associated haemolytic uraemic syndrome. Professor Webb is Director of the NIHR / Wellcome Trust Manchester Clinical Research Facility (£12.5m NIHR funding) having previously led the development of the Children’s Clinical Research Facility based in the Royal Manchester Children's Hospital. He is the editor of Clinical Paediatric Nephrology (3rd Edition) and the Oxford Specialist Handbook of Paediatric Nephrology (1st and 2nd Editions), two major international textbooks of Paediatric Nephrology published by Oxford University Press. He is on the editorial board of the scientific journal Pediatric Transplantation.
Dr. Adrian S. Woolf
Thursday 7th, 11:30 JOINT SESSION ESPU: Can we fix congenital renal tract abnormalities? Will we be able to do this better in the future? Could we fix renal malformations by mixing genetics and developmental biology with regenerative medicine?
Adrian S. Woolf is Professor of Paediatric Science in the Division of Cell Matrix Biology & Regenerative Medicine, University of Manchester, UK. He is also an Honorary Consultant Nephrologist at Royal Manchester Children’s Hospital, and Honorary Professor at University College London. As a Travelling Research Fellow at UCLA (1989-1991), he became interested in how kidneys grow before birth. He returned to the UK as a Kidney Research UK Senior Fellow (1991-1996) to establish a research group in the Developmental Biology Unit, Institute of Child Health, University College London. There, in 1998, he formed the academic Nephro-Urology Unit and he was promoted to Professor of Nephrology in 2000. In 2010 he was appointed as Chair of Paediatric Science at the University of Manchester. Adrian has 25 years’ experience working out the mechanisms of normal renal development and discovering how these go wrong when they lead to people being born with malformed renal tracts. He now aims to take the renal malformation research field into a new, exciting and technically challenging direction, namely to take the first pre-clinical steps towards biological therapies for these devastating diseases. Adrian runs a Renal Genetics clinic in the Royal Manchester Children’s Hospital. Making a specific genetic diagnosis can provide a family with an answer to their often long-sought question “why was our child born with devastating disease”. Working in a multidisciplinary team, he undertakes a similar renal genetic clinic, for Adults with kidney problems, in St. Mary’s Hospital.
Dr. Anne Wright
Enuresis and bladder dysfunction workshop
Anne Wright is the lead consultant for the Children’s Bladder clinic at the Evelina London Children’s Hospital (Guy’s and St Thomas’ NHS foundation Trust) where she works closely with the Nephro-Urology and paediatric Neurology covering the full spectrum of childhood bladder dysfunction from enuresis to neuropathic bladders with an average of 2000 outpatient visits/annum. She is responsible for paediatric videourodynamic investigation within the service which currently averages 350 studies/annum. She also works closely with her gastroenterology colleagues to manage children with joint bladder and bowel dysfunction. She works one day a week in the Community with additional responsibilities for physical and learning disabilities, neurodevelopmental disorders (Autistic spectrum disorders, ADHD) and Child Protection. She has worked with NICE for the Childhood Enuresis guidelines and Quality Standards, is Chairperson of the ERIC (Education and Resources for improving Childhood continence) clinical advisory committee and is Secretary General of the International Children’s Continence society. She teaches and presents widely at conferences.